Understanding the financial needs of disabled people: Privacy Notice
About the project
We would like to understand whether and how financial support helps meet the needs of disabled people with mental and physical health conditions across the UK.
The Trussell Trust has funded the Scottish Centre for Social Research (ScotCen) to speak to disabled people and write a report. ScotCen is part of the National Centre for Social Research (NatCen).
About this privacy notice
This privacy notice explains how your personal data (e.g., any information that could identify you such as gender and age) collected for the purposes of this research are used and handled.
The Trussell Trust is the “data controller” which means that they decide what personal data is collected from you as part of this research.
The Scottish Centre for Social Research (ScotCen) is the “data processor” for this research, which means that ScotCen will be responsible for collecting information from you during an interview, securely storing it and using it to write a report on behalf of the Trussell Trust.
The legal basis for collecting this information is ‘legitimate interest’ which means it is being collected to inform our understanding of whether and how financial support helps meet the needs of disabled people with mental and physical health conditions, a task which will support the Trussell Trust in their campaign to end financial insecurity among disabled people.
What will happen to the information you provide
We will use the information collected from the interviews to write a report for the Trussell Trust. We will not publish anything that can reveal your identity. Your name and any personal data will be stored securely.
ScotCen will not pass your personal details to anybody without your permission. No information that could make a person identifiable will be passed on to the Trussell Trust. Only the research team at ScotCen and NatCen will have access to your personal data.
How long your information is stored for
All personal data and interview responses are stored securely and confidentially under the terms of data protection and in line with international best practice and our ISO27001, ISO 20252 and Cyber Essentials Plus certifications.
The interview recordings and transcripts, and any of your personal data, will be stored by ScotCen Social Research for 12 months after the end of the project. They will then be securely destroyed.
Your rights
Taking part in an interview is voluntary. You are free to withdraw at any time without consequence, and you do not have to answer any questions you do not want to.
Data protection legislation gives rights to individuals in respect of the personal data that organisations hold about them. These include the right to:
- access a copy of the information an organisation holds about them
- object to processing that is likely to cause or is causing damage or distress
- prevent processing for direct marketing
- have inaccurate personal data rectified, blocked, erased or destroyed in certain circumstances; and
- claim compensation for damages caused by a breach of the legislation.
If you have questions about your personal data held by the data controller you can contact privacy@trusselltrust.org.
We guard your privacy
We will treat the information you give us in the strictest confidence under the Data Protection Act 2018 and the UK General Data Protection Regulation.
No one looking at the findings in the report will be able to identify you in any way. You will never receive any junk mail as a result of speaking to us. We never pass on your details to other organisations for any reason. The only exception is if you tell us that you or someone else is at immediate risk of harm.
At ScotCen we have a comprehensive set of policies and procedures which apply to all parts of our organisation. Alongside our ongoing programme of internal audits, we undergo formal external audits annually to ensure we continue to meet all the requirements of ISO27001 and other international best practices.
How to contact us
If you have any questions, please contact us: disabilityviews@scotcen.org.uk
Complaints
If you have questions or concerns about how your personal data are collected or used, or if you believe we have not complied with your data protection rights you can contact NatCen’s Data Protection Officer by email at dpo@natcen.ac.uk.
You also have the right to lodge a complaint with the Information Commissioner’s Office. If you are unhappy with the way your personal data are being processed, you can report it to the Information Commissioner’s Office (ICO) at https://ico.org.uk/concerns or by calling the ICO helpline on 0303 123 1113.