How can we maximise informed consent to link survey and digital trace data (DTD)?

Understanding (Offline/Online) Society: Linking Survey and Digital Trace Data

Summary

A key step in linking survey and digital trace data (DTD) is receiving informed consent from participants to do so and enabling them to provide that access. If rates of consent or data provision are low, the risk of bias in the sample can increase and the quality of the research can be undermined. It can also reduce the amount of data available for analysis or increase costs, as more effort is required to reach sufficient sample sizes for robust analysis. It is also important to ensure that any decision is appropriately informed - for ethical and, potentially legal reasons. 

Consulting the public can be a key step in ensuring that protocols developed for research are effective and ethical. By doing so we can understand the concerns of the people whose data are being processed, not just reflecting the assumptions of the researcher, and address them. As part of this work strand, we have conducted studies to establish consent rates, conducted experiments to measure the effectiveness of different approaches to improving them, and conducted analysis of the biases that non-consent introduces. 

Outputs

2024

Paper: Linking survey with Twitter data: examining associations among smartphone usage, privacy concern and Twitter linkage consent

Presentation: How can we maximise informed consent to link survey and digital trace data (DTD)? (Slides 1) (Slides 2) (Video)

2023

Presentation: Linking survey and social media data: Experiences and Evidence.

Presentation: Consent to link survey and Twitter data in panel surveys - experimental evidence 

Presentation: Is consent to link survey and Twitter data associated with reported Twitter behaviour? 

2022

Paper: Understanding Society Innovation Panel Wave 14: Results from methodological experiments 

Book chapter: Linking Twitter and Survey Data: Gaining Consent, Making the Link, and Maintaining Data Security 

Presentation: Linking Twitter & Survey Data: Improving measurement of both data sources (pdf)

2021

Paper: Informed consent for linking survey and social media data - differences between platforms and data types 

Paper: Linking Twitter and survey data: Asymmetry in quantity and its impact 

Paper: Views on social media and its linkage to longitudinal data from two generations of a UK cohort study 

Presentation: Public attitudes to linking survey and Twitter data 

Presentation: Public attitudes to linking survey and Twitter data
 
2020

Paper: Linking twitter and survey data: The impact of survey mode and demographics on consent rates across three UK studies. 

Paper: Linking survey and twitter data: Informed consent, disclosure, security, and archiving 

Paper: Methodological Briefing: Linking Survey and Social Media Data 

2018

Paper: Understanding Society Innovation Panel Wave 10: Results from methodological experiments 

2017

Book chapter: Users' view's of ethics in social media research: informed consent, anonymity and harm