Who uses your data?
At some point during your interview we will ask you if you agree to us passing on your name, address and date of birth to different governing bodies in order to provide us with a fuller picture of your health. You can read more about linking data here.
The Government uses results from the survey to make decisions that improve public health and protect food safety. Results from the survey have led to public health campaigns such as Change4Life which encourages people to “Eat well, move more and live longer”.
Once results from the survey have been published by the Government, academics study these results for their own research purposes. Academics have looked at a number of interesting diet and nutrition issues, including how parental employment shapes children’s eating habits.
Your information: how will we store, look after and use it
Do I have to take part?
Taking part in NDNS is completely voluntary. You have the right to stop being part of the survey at any time without giving a reason.
What will happen to any information I give?
The information collected from you, including any urine and/or blood samples, will be used for research and statistical purposes only. Some of the data that we collect from you for NDNS contains information that can be used to identify you. This type of information is called identifiable information and includes things like your name or date of birth. We will handle your data (including identifiable information) in accordance with the UK General Data Protection Regulation (GDPR). Everyone involved in NDNS will keep your data safe and secure.
Your answers and other information collected from you will be combined with the information collected from other people who take part in NDNS.
We will make sure that your information is anonymised which means that your identifiable information is removed, and no-one can work out who you are from the information in any published datasets or in the reports we write. The anonymised survey findings will be published in reports on the GOV.UK website. The anonymised survey data is also put on the UK Data Service for researchers to use.
In the future, we may want to contact you to invite you to take part in another study. We will only do this if you consent to this during your NDNS interview. If you are invited to take part in any future studies, you will be free to refuse if you do not want to take part.
The lawful basis for collecting this data is the performance of a task carried out in the public interest backed up by consent for collection and storage of your urine or blood samples or data linkage.
The data controllers for NDNS are OHID and the FSA. NatCen collects the data in England, Scotland and Wales and both NatCen and NISRA collect data in Northern Ireland. NatCen and NISRA are data processors for NDNS along with other supporting organisations such as laboratories or external printers.
Only certain members of the research team and your interviewer team will have access to your identifiable information.
Where is my identifiable data stored?
All identifiable information will be stored securely. No identifiable data, such as your name or contact details, will be stored in any archived data or publications nor will they be transferred outside the European Economic Area.
How long will you keep my data?
NDNS looks at trends over time, and therefore we need to keep the answers and information collected about people’s diet and nutritional status permanently. Please note that once your data has been finalised and combined with that of others, , it cannot be deleted. This is because this data may already form part of the data in publications.
If you give consent, your blood or urine samples taken as part of this study will be stored indefinitely for use in future research studies. Access to these samples will only be granted to studies with the appropriate ethical approvals in place. If you do not give consent for your samples to be stored, they will be kept only until the NDNS reports are published.
You can request that your identifiable data is deleted at any time. To do this, please get in touch with NatCen using the contact details provided at the end of this leaflet.
Who can I contact?
If you have any queries about how your data is handled, please get in touch:
Data Protection Officers are responsible for upholding your rights and making sure we process your information correctly.
The contact details for the DHSC Data Protection Officer:
Data Protection Officer
Department of Health and Social Care
1st Floor North
39 Victoria Street
Personal information charter - Department of Health and Social Care - GOV.UK (www.gov.uk)
The Data Protection Officer in the FSA is the Information Management and Security Team Leader:
FSA in York
1-2 Peasholme Green
If you have any queries, or want to request that we change or delete your information, contact NatCen at:
NDNS Research Director: Beverley Bates,
Kings House, 101-135 Kings Road,
Brentwood, Essex, CM14 4LX
0800 652 4572
As a participant, you have the right to lodge a complaint with the Information Commissioner’s Office.
Information Commissioner’s Office
Wilmslow, SK9 5AF
0303 123 1113