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Privacy notice

Who is the data controller and data processor?

The Department for Digital, Culture, Media and Sport (DCMS) is the data controller and the National Centre for Social Research (NatCen) is the data processor for the research.

What is the legal basis for processing my data?

For this research, the legal basis for processing data is ‘Public Task’ Article 6(1), that it is necessary for the processing performance of a task carried out in the public interest or in the exercise of official authority vested in the controller.

As information concerning health is a special category of personal information, a further section of the UK GDPR applies:

Article 9(2)(g) – substantial public interest (with a basis in law)

Processing is necessary for statutory and government purposes, to meet obligations under the Public Sector Equality Duty, as set out under section 149 of the Equality Act 2010.

What personal data is being collected and why do you want to process this information?

Personal data (such as age, gender etc.) and special category personal data, including data on health conditions or disabilities, will be collected during this research, as well as your contact details. However, all responses will be anonymised for analysis, so you will not be identifiable.

Who will have access to my personal data?

Only the NatCen research team will have access to your personal data.

If you have been recruited by Propeller Research, they will have also have access to your personal data provided to them during the recruitment screening.

Do I have to take part?

Taking part in this study is completely voluntary – you do not have to take part if you do not want to. There is no statutory or contractual requirement to participate or provide any personal details. There will be no consequences if you choose not to take part.

In the interview, you do not have to answer any question you do not want to and you are able to withdraw from the research if you so wish, before, during or after the interview, until your data has been processed at the end of March 2022. You can also change your mind about completing the diary at any point.

How will my information be used?

The data collected will only be used for research purposes. We will use the information provided from the digital diaries to inform the interview discussion and use the information from both the diaries and interview to write a report for DCMS. Interviews will be audio recorded with your permission and transcribed by our trusted transcription agency (McGowan Transcriptions). The interview recordings, transcriptions and digital diary entries will be used to write a report about the topics that people have talked about, which will be published. No individual will be identifiable in the research report.

How will my information be stored?

NatCen will carefully manage your personal data. All the information you provide will be held in strict confidence and held securely, so that only the research team will have access to your personal data. This data will not be held for any longer than is necessary to complete the research and will be deleted within 12 months of the project ending.

The data uploaded to the digital diaries is permanently deleted the server once the diary is complete. NatCen will securely delete the downloaded data from our system within 12 months of the project finishing.

Will I have access to my information?

Yes, you are able to request the information that you have provided to us.

Will I be able to change my mind about participating at a later date?

Yes, you are free to withdraw from the research at any time. Please note that once data is aggregated and analysed, we would not be able to change the overall results by removing individual information. However, you can always request that your personal data be deleted or updated, and we will let you know immediately if this is possible or not.

If you would like to make any request related to your personal data or to withdraw your consent, please contact MHStudy@natcen.ac.uk

Who can I contact with a query or a complaint?

If you have any questions about how your data will be used, please contact NatCen’s Data Protection Officer at dpo@natcen.ac.uk or DCMS’ Data Protection Officer at dpo@dcms.gov.uk.

Under GDPR, you have the right to lodge a complaint with the Information Commissioner’s Office. Please go to www.ico.org.uk for more information.