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Carers' Quality of Life

Mum and grandma
Published: October 2016

This study looks at the impact of caring for other adult family members has on the quality of life of the carers themselves.


The findings from this study will provide important information about the impact on carers, and will help raise awareness of the issues they face which future campaigns will be able to address.

Various questionnaires have been developed to measure the quality of life of carers, but we do not know which questionnaires are valid, responsive, and acceptable.

The Carers’ Quality of Life project has been set up to test two of these questionnaires (CarerQoL and Carer Experience Scale) and will explore whether they are valid, responsive and acceptable in the context of informal family care. 

The study is funded by the National Institute for Health Research. We are carrying out this research in partnership with the University of Birmingham


A report for this project will be produced by the University of Birmingham


NatCen will screen over 3,000 individuals across the UK, for eligibility and willingness to take part in a postal survey. This screening will happen via telephone, between 8th August and 18th September 2016.

University of Birmingham will select 900 carers to take part in this study. They will send selected carers the first survey by post in October, and a follow up survey about 12 months later.