Why is this data being collected?
The E-Risk study aims to build knowledge of how environmental and genetic factors contribute to the development of behaviours, health and mental health from childhood.
E-Risk has commissioned the National Centre for Social Research (NatCen) to carry out the study on their behalf. NatCen is Britain’s largest, independent, social research agency. For over 50 years it has worked with universities, charities and government to find out what people really think about the big issues. NatCen is independent of all government departments and political parties.
What is the lawful basis for processing this data?
The legal basis for processing your data, under GDPR and the Data Protection Act, is the performance of a task carried out in the public interest, namely scientific and statistical research purposes.
Who is the data controller?
Kings’ College London (KCL) is the data controller. NatCen Social Research is the data processor.
For more information about your privacy rights please visit: https://www.kcl.ac.uk/terms/privacy
You can contact the Data Protection officer at KCL by email at email@example.com or by writing to:
Information Compliance team
King’s College London
Room 5.20 JCMB
57 Waterloo Road
Will data be shared with any third parties?
Identifying information such as names and addresses are stored separately from the research data when the study is finished and are not shared outside the study team. The anonymous research data are shared inside and outside KCL, but only with qualified researchers and subject to a data sharing agreement.
Some elements of the processing, such as printing and postage will be sub-contracted. All sub-contractors working for NatCen come from our ‘Approved Supplier List’. These are suppliers that we have vetted and with whom we have signed agreements that are refreshed every 12 months. All data provided to these third parties is deleted after their element of the study is complete.
Do I have to take part?
Taking part is entirely voluntary. You can skip any questions you do not wish to. All data will be anonymised.
Where will my personal data be stored?
All personal data held at NatCen are stored securely, in line with international best practice and NatCen’s ISO27001, ISO 20252 and Cyber Essentials Plus certifications.
Administrative data (including names and contact details) are stored in a secure database system within the KCL network. The system can only be accessed by authorised members of the E-Risk admin team. The administrative data are stored separately from the research data, in order to minimise any risk of linking confidential research data back to identifiable participants.
How long will you keep my data?
As the E-Risk Study is an ongoing longitudinal study, the research data will be kept for the duration of the study. When the E-Risk study eventually ends, the research data will be archived for future research purposes, but in an anonymous form whereby participants are not identifiable. Administrative data such as names and contact details will be deleted when the E-Risk Study ends.
Will I have access to my data?
Yes, but please note that once data is aggregated and anonymised, we would not be able to change the results by removing individual information. However, you can request that your personal data be deleted or updated and we will let you know immediately if this is possible or not.
You can contact the NatCen Data Protection Officer by email: firstname.lastname@example.org.
You also have the right to lodge a complaint with the Information Commissioner’s Office at:
Information Commissioner's Office
Telephone: 0303 123 1113