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Privacy notice

In this privacy notice, we explain the legal basis for data processing, who will have access to your personal data, how your data will be used, stored and deleted, and who you can contact with a query or a complaint.

In line with the new EU General Data Protection Regulation (GDPR), there are certain things that you need to know about how your information will be processed. In this privacy notice, we explain:

  • the legal basis for data processing;
  • who will have access to your personal data;
  • how your data will be used, stored and deleted; and
  • who you can contact with a query or a complaint.

What is the legal basis for processing my data?

The Department of Health and Social Care (DHSC) have appointed the Carers Trust (CT) and The National Centre for Social Research (NatCen) to carry out this research. 

The data controller for this evaluation is the DHSC. The CT and NatCen are the data processors. In order for the use of personal data to be lawful, we need to meet one (or more) conditions in the data protection legislation, as set out in Article 6(1) of the General Data Protection Regulation (GDPR). For the purpose of this project, the relevant condition(s) that we are meeting is condition (e) ‘public task’.

You can contact the team at NatCen with any questions about the research and processing of data at: YCstudy@natcen.ac.uk

More information about NatCen’s research activities can be found on this webpage.

Who will have access to my personal data?

NatCen are carrying out this research and will have access to:

  • participant contact details;
  • audio recordings of interviews;
  • interview transcripts; and
  • interview notes;


Carers Trust will have access to:

  • participant contact details.

All data gathered from interviews and focus groups will be anonymised before being analysed and archived, and data will not be transferred outside of the European Economic Area.

McGowan Transcriptions is the transcription service we use to transcribe our interview data. They will have had access to recordings and transcriptions from interviews with the stakeholders and young carers. McGowan Transcriptions are on our approved supplier list and compliant with all of our information security policies.

How will my data be treated?

Data will only be used for research purposes. NatCen and CT will store and handle all data securely and confidentially in line with the GDPR. Only the research team will have access to the data. Reports and publications arising from this research will not identify any individual young carer taking part in case study focus groups.

All personal information, and any other data held on the project, will be securely deleted within two years from project completion in March 2019.

Who can I contact with a query or a complaint?

If you have any questions about how your data will be used, please contact the NatCen’s Data Protection Officer at dpo@natcen.ac.uk.

Under GDPR, you have the right to lodge a complaint with the Information Commissioner’s Office. Please go to www.ico.org.uk for more information. 

20th November 2018