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Public attitudes to data linkage

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Published: March 2018

This study explored Health Survey for England (HSE) participants’ attitudes to data linkage.

Aims

The overall objective of this study was to explore people’s understanding and perceptions of data linkage, particularly linkage between health examination survey data and administrative records.

The findings will help inform approaches to linking data for research, and communication strategies with survey participants regarding data linkage.

 

Methods

Three deliberative discussion groups were carried out between November 2017 and January 2018. Respondents had all previously taken part in the 2016 Health Survey for England (HSE) and included a mixture of individuals who had and had not provided consent for data linkage at the time of their HSE interview.